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Patient Access & Engagement

ASGCT 2019: Patients Are Top Priority

30 May 2019

Amanda Kendall, Phacilitate’s head of community, gives her first-hand account of ASGCT 2019

Amanda Kendall, Phacilitate’s head of community, gives her first-hand account of ASGCT 2019

I made the trip over the Atlantic a few weeks ago to represent Phacilitate at the 22nd ASGCT meeting in DC. As a relative newcomer to the industry, I was excited to spend a few days immersing myself in the inner workings of the industry! We’re in the business of running events so it was refreshing to be a delegate and enjoy the full experience of a conference; meeting new people, seeing familiar faces and learning about the market.

This meant I got to have some really meaningful discussions ranging from durability vs cost and reimbursement to manufacturing capabilities and so forth but there was one challenge that really hit home for me. Patient access.

It was intriguing to hear first-hand about the growing concern for accessibility of treatment centres, standards of care and durability of the treatments. Even after some productive discussions, I would sometimes leave the conversation with more questions than answers, which is a testament to the major shift needed across healthcare systems and infrastructure. With only a few major centres of excellence that can offer the expertise to administer these specialised treatments, the question now is how do we improve access for patients?

ASGCT 2019

The commitment our industry has is truly heart-warming and patients really are at the core of what we do. Whether they were talking about specific patients they have been treating, showing us before and after photos or describing promising results of ongoing clinical trials, it reminded me why we’re all here in the first place – to learn from each other, advance the industry and save lives.

I look forward to the next meeting and continuing the conversation. In the meantime, here are some great resources from the industry on patient access and healthcare infrastructure…