Caryl Harris co-founded Avery’s Hope with her husband Eric in honor and celebration of their grandson, Avery, who lives with Microvillus Inclusion Disease. Caryl is a member of the National Organization for Rare Disorders and is a representative for Avery’s Hope with the EveryLife Foundation Community Congress, and the Global Genes Rare Foundation Alliance. Caryl recently became a member of the Patient Action Collective with No Patient Left Behind.