Ellen lives in the Chicago area with her family.  Ellen has been involved with PPMD for better than 25 years.  Ellen has a background in healthcare.  She has volunteered for Parent Project Muscular Dystrophy, served as member of the PPMD Board of Directors and currently works for PPMD in the patient engagement area.  Ellen lost her son, Timothy to Duchenne and is committed to supporting the life of families with Duchenne. Muscular Dystrophy.